Blog :

Cardiac Alliance’s collaboration in war-torn Benghazi brings sustainable healthcare to children

Reuters journalist Ayman al-Warfalli recently interviewed our team in Libya, where there are “more than 300 kids waiting for open heart surgery, maybe 400.” Cardiac Alliance strives to maintain our collaboration with the hospital in Benghazi to care for these children in need.

Read the Reuters article to learn about the desperate need for sustainable healthcare in Libya.

With your support, we can continue our education programs to save more children in countries like Libya.

Commitment to Sustainability

Commitment to Sustainability

 

Recognizing that congenital heart disease requires lifelong care, Novick Cardiac Alliance continues to return to our partner sites multiple times per year over several years, because of children like Ahmed.


Dr. Novick first met Ahmed in 2010, when he was 5 years old. Ahmed was born in Nasiriyah, Iraq with a complex heart defect. Similar to most tragic truths in the developing world, there were no doctors in Iraq that could help their son. Ahmed’s parents felt hopeless watching their little boy constantly out of breath and not gaining weight like their four other healthy children.
Then they learned that an American team was coming to the city of Sulaymaniyah in northern Iraq. Ahmed’s parents traveled over 10 hours by car in the hopes of finally giving their son a chance to receive the heart surgery he desperately needed. Dr. Novick performed Ahmed’s first surgery in August 2010 in Sulaymaniyah, alongside Iraqi surgeons. Ahmed recovered well after this surgery and was a healthy boy as he grew up in Nasiriyah. About a year ago, Ahmed began experiencing the same symptoms of heart failure, coughing a lot and often extremely tired. Now in 2015, there were Iraqi pediatric cardiac surgeons operating, but Ahmed’s condition was too complex for these novice Iraqi surgeons. Once again, Ahmed would have to wait for external aid. And once again, Dr. Novick came to the rescue.

Ahmed received a second chance at a healthy life when Novick Cardiac Alliance operated on him in Karbala, Iraq in January 2017. Ahmed was such a joyful boy to care for in the ICU. He was always in high spirits. His first time out of bed he danced and stomped around the ICU in pure joy to be alive. Every time we saw him on the ward, he wanted to tell us how well he was doing. Though we didn’t speak Arabic, we understood his fist in the air accompanied by a loud “roar” was his way of proving to us that his heart condition would not defeat him!

Children with congenital heart defects like Ahmed require continued follow up visits with a cardiologist. When a child is born with a broken heart, they can develop symptoms in the future, even if they’ve had surgery. Some children will need to have more than one surgery in their lifetime. This is why Novick Cardiac Alliance aims to educate the local medical team so that they can provide the necessary care for children like Ahmed.

You can help us to build sustainable health care solutions for children like Ahmed around the world.

Meet Narjis, our first patient of 2017!

Meet Narjis, our first patient of 2017!

Narjis was born in Baghdad, Iraq in October 2016. When she was about two weeks old, her parents Akar and Nor Maseer noticed she was breathing fast. They took her to the doctor and an echocardiogram showed she had two holes in her heart, an atrial septal defect and ventricular septal defect. The doctor gave her medicines and told the family to return in 1 week. After this week, Narjis did not improve and the doctor said she needed surgery. Unfortunately, there is no hospital or heart surgeon available for babies in Iraq, so doctors advised Narjis’ parents to take her outside Iraq.

Advocating for his daughter, Narjis’ father Akar found a new doctor in Baghdad, but this doctor said her lung pressures were too high and surgery would now be impossible. Not losing hope, Akar found yet another doctor for his daughter, but still the same answer: his family must travel outside of Iraq for her surgery, and if they didn’t she may not survive until her 1st birthday. At two months old, Narjis barely weighed as much as a newborn baby because of her heart defect.

Still searching everywhere for a better solution, Narjis’ father saw an advertisement on Facebook from Al Kafeel Super Specialty Hospital in Karbala with the news that Dr Novick and his team would be coming to provide heart surgeries for children. Narjis’ parents packed their bags and drove to Karbala to meet our cardiologist on the first day of our arrival. Her heart surgery was scheduled for the next day.

Now 3 months old, Narjis received her life-saving heart surgery to close those two large holes on January 16th. She recovered quickly and was back in her mother’s arms on the ward within two days. Narjis’s parents are very thankful that their sweet little daughter is healing and eating better. Just two weeks ago they were fearful they may lose their newborn baby, and now they see her future is bright.

Help Ecuador!

Help Ecuador!

 

The recent earthquake in Ecuador has devastated the country, the death toll rises each day and thousands of people are injured and homeless. We at Cardiac Alliance want to extend our sympathy and support to our friends and colleagues who are working to alleviate the suffering caused by this tragedy.

ecuador earthquake. JPEG

As aid pours into the country from all sides we ask that you help us to support our dear friends at ‘Fundacion El Cielo Para Los Ninos”,  (Heaven for Children). This organisation is based in Guayaquil, Ecuador and has been providing medical and surgical care for children and families since 1991.

13012816_1349458081736156_5444941992419594335_n

The director of this organisation Dr. Zorayda Figueroa Aguiar has lost family members in this tragedy and despite her personal losses she has committed to continue her work for the children of Ecuador. Please help us to support Fundacion El Cielo Para Los Ninos as they continue their vital work by clicking here to donate.

We Are Cardiac Alliance

We Are Cardiac Alliance

This week marks our first anniversary as Novick Cardiac Alliance, though our team has been working together for many years. Our new video shows you a little about where we have been and what we have been up to…   And we are only just getting started – Join us!

 

Donate  financially or Volunteer with us and help to show every child that they are worth the risk.

The Ugly Duckling and the Swan

The Ugly Duckling and the Swan

I am sure you remember the childhood story of the Ugly Duckling who was constantly reminded of his physical shortcomings as he grew up. Children with single ventricle defects remind me of this story of the Ugly duckling who grows up to be a beautiful swan.Julia at work

Unlike most of us, who have two ventricles, children with one ventricle spend a great deal of their childhood as in-patients in hospitals or visiting doctors in out-patient clinics. They are poked routinely for blood tests, examined constantly for the functionality of the one pumping chamber they have and questioned by other children as to why they can’t play the normal childhood games . Against this nearly continuous barrage of unwanted attention these children must grow up, go through the normal milestones all kids attain and become adults, with little knowledge of how long they have been granted time on this earth.

We don’t know how long these single ventricle operations will keep children alive because the operation is only 43 years old itself and has undergone so many modifications that much of the previous research experience is now meaningless. We do know that the latest versions of the Fontan-Kreutzer Operation are keeping more people alive longer, but whether that will translate into a life-span on this earth that approaches normal is unknown at this time.So an uncertain future, harangued and harassed as children and told they are not the same as others, does this not sound like the Ugly Duckling?Julia in 1994

Twenty-one years ago in Kyiv, Ukraine there was a child of 7 years of age, who wore the label of single ventricle, or Ugly Duckling. Julia lived in a country where few Fontan procedures had ever been performed, and certainly not with success. The first picture, taken just after discharge from the ICU, does not reveal the Swan that she would become. As a young woman post Fontan she did not know she was supposed to continue in the Ugly Duckling role, she decided that since she had been given a second chance at life she would use every second to live life to her full capacity.Julia scuba diving

So our Ugly Duckling finished primary school and overtime the Swan began to emerge, first exceling in her advanced studies and then entering into a career that no Ugly Duckling could have imagined she became a successful Fashion Model. Traveling to far away sites for modeling shoots, what about a single ventricle scuba diving? Today she is considering the next career in her eyes, she wants to be a mother, and this is what reunited us 21 years later. She had developed an urge so powerful to meet the surgeon who had given her the opportunity for this second birthday and new life that she did not quit searching until she succeeded. I met this new Julia in Ukraine just last week.Dr No and Julia

Parents of children with single ventricle should celebrate the lives these children have and always remember that these ‘Ugly Ducklings’ can and do grow up to be magnificent Swans.Julia smiling

Volunteer Story – Lacy Holevis

Volunteer Story – Lacy Holevis

Lacy Volunteered on our recent trip to Nizhny in Russia.Lacy with Team members

I’ve always wanted to do some type of volunteer work and this organization really caught my attention because they strive to educate and support hospitals and staff about pediatric cardiac care around the world. I’ve e been a PICU/CICU nurse for seven years now and I am passionate about taking care of children with cardiac defects. I love to learn about other cultures and how medicine and nursing are practiced in other countries. This organization is perfect for me because it gives me an opportunity to do both of those things while helping children at the same time. I also enjoy educating the local staff in other countries about how to take care of these children in the postoperative period. Teaching them how to do a good nursing assessment, take frequent vitals and showing them how to take out drains, lines and wires. The organization’s staff is wonderful and very knowledgable and I really enjoy working with them and learning from them.I would recommend any nurse that takes care of pediatric cardiac patients to go on a trip with this organization.  It’s so rewarding!

Lacy and BabyVolunteer with Cardiac Alliance and make a difference  today.
David and Goliath

David and Goliath

David is 15 months old  and has been fighting to survive against all odds. David was born in Nigeria, which is a country without a pediatric cardiac surgery programme. Children in Nigeria who need a heart operation have to wait until a foreign team visits their country and hope that they are put on the short list.David with Dr Novick

David had a very complex heart disease called Truncus Arteriosus (the Goliath of this story) and for most visiting teams this was not a type of surgery that they would perform on a short surgical trip. Not because they did not want to but because they knew that David would take a long time to recover in the ICU as he would be very weak and sickNurse led rounds in the ICU

At Cardiac Alliance we believe that empowering the local team to care for children like David is just as important as performing multiple surgeries on a trip. During the first week of our recent trip to Nigeria we worked with the amazing team of nurses and doctors in the ICU in and helped them to prepare to receive a baby as delicate as DavidNurse Princess caring for David

David had surgery at the beginning of our second week and he did very well. He was very sick but the local Nigerian nurses learned how to care for him quickly. One nurse would sit beside him and rub his feet until he fell asleep because it was important to keep him calm – we said that she was better than any medicine!Nurse comforting DavidDavid won his battle- and with your help we can continue to care for children like David as they fight to live healthy and happy lives. We hope to make many more trips to Nigeria in the next few years, Volunteer with us or Donate today to make this possible.